Jamus Hovseth, a 3-year-old boy just as cute as his name sounds, was diagnosed with Food Protein-Induced Enterocolitis Syndrome (FPIES), which means his body can’t tolerate any food he tries to take in. He has to undergo extensive food trials to search for a source of nutrition, but they always end in severe immune reactions. A very specific formula called Neocate Junior has helped Jamus survive. But when Nutricia, the maker of his formula, decided to change it, Jamus no longer had any reliable source of food his system could tolerate.
Jamus’ condition brings about heartbreaking limitations. He can’t do many things children his age love to do, such as swim in the pool, use his imagination with Play-Doh, or even paint pictures without gloves because of his harmful reactions.
In November 2013 the Hovseths turned to Red Basket for help. With enough supply of Neocate Junior to last only a few more months, the Hovseths needed a new formula, and fast. They began working with medical professionals from Omaha and Philadelphia to attempt to concoct a new formula compatible with Jamus’ body, but did not find any success. That was until they received the life-changing news: Nutricia was restoring the old formula that worked for Jamus!
Getting the old formula back was no easy task. It involved hard work and dedication by the Hovseths and their family, friends, and loved ones. They started a Facebook page, “Fight for Jamus,” to rally the community and also began a petition which amassed over 2,000 signatures in only a few weeks. Their loved ones wrote letters to congressmen and senators, describing Jamus’ situation and asking for their help. Even the City of Papillion got involved, throwing a fundraiser for the community which raised more than $19,600. With additional generosity from contributors after the event—from people like you on Red Basket—the total amount surpassed $31,000.
The money raised on Red Basket helped the family of this tough little boy pay off medical bills and travel expenses while they searched for a cure. Jamus now has a steady source of nutrition while his family continues to search for sustainable food for his diagnoses, and eventually, a cure. Thanks to your kind spirits of giving, this self-proclaimed “Iron Man” has won the battle.
To read Jamus’ Red Basket story, click here: Fight for Jamus